This amazing documentary about the super fabulous Bernadette Scarduzio is a must-see and it will stay with you long after viewing.
The film (available on Amazon Prime) shares a very personal glimpse into Bernadette’s life; the many challenges she faces, incredible losses and her resilience. Bernadette suffers from Charcot-Marie-Tooth (CMT) disease, a genetic disease affecting the nerves of the arms and legs, and she is a huge source of inspiration to those of us within the CMT community. She continues to help raise awareness about CMT through her work at the Hereditary Neuropathy Foundation.
Since the release of the movie Bernadette’s life has changed in many ways. In particular, she quit smoking and learned to drive a hand-operated vehicle! She has also connected with a huge community of people with CMT, many of whom have become close friends.
When I spoke with Bernadette recently, she said, I am honored to be one of the leaders for CMT awareness and I will never stop fighting for those of us who can’t fight for themselves.” You can reach Bernadette at HNF.