Lifestyle style choices to look good and feel good with an invisible disablity

Lifestyle Clothes & shoes to wear with leg braces / afos for an outdoor party

What to wear with a barbecue with leg braces

Nothing screams the start of summer more than a backyard barbecue! With Memorial weekend fast approaching, patio furniture everywhere, is being cleaned and uncovered and the smell of charcoal is beginning to fill the air. Whether it’s a graduation party or casual gathering with friends, an evite to some type…

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FashionLifestyle How to look & feel sexy on Valentine's Day with an invisible disability, afos and neuropathy.

Date Night Valentines Day

There is no better excuse than Valentine’s Day to channel your inner Beyonce and act like the sexy goddess you are. Whether you’re planning a romantic night out, dinner with girlfriends, or a date night with Netflix & some cheap champagne, February 14th is all about looking and feeling red…

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Lifestyle How to improve your life and make New Years resolutions With An Invisible Disability like Charcot Marie Tooth Disease.

Choose Your Own Adventure

Do you remember those Choose Your Own Adventure (CYA) books from the 80’s 90’s? I know I’m totally dating myself but I was soooo into them (for about a minute) in between Judy Bloom books (hijacked copy of Wifey not included) & the Sweet Valley High series.

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Lifestyle How to balance Christmas parties & life an invisible disability like Charcot Marie Tooth, MS, Cerebral Palsy, & neuropathy.

Holiday Survival

The Holiday Season isn’t all jingle bells and sleigh rides when you have an invisible disability. As temps begin falling and your calendar starts filling, the stress and worry about how the hell you’ll make it through it all, rears it’s Scrooge like head. Of course this time of year…

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LifestyleResourcessidebar How to Be Happy and more confident When you have a disability and Neuropathy from a chronic condition like Muscular Sclerosis or Charcot Marie Tooth Disease.

HOW TO PHOTOSHOP YOUR SELF-IMAGE

Do you remember when we had to have our photos developed before viewing the images? The days when selfies weren’t even a thing and group shots didn’t involve a million retakes? Back then, we had no way of knowing if our arms looked flabby or if our leg braces were…

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Lifestyle 13 Apps To help people with chronic conditions and disability live happy lives

13 LIFE CHANGING APPS

There’s an app for almost everything these days. I’m by no means a techy, ( I couldn’t move past level 1 in Ms. Pac-Man and flunked high school typing) but in order to keep up with and track of my kids, I’ve evolved into an app connoisseur of sorts.

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LifestyleResources Unexpected Priveledged Problems When You have disabilities, Wear AFO’S /Leg Braces & Have A Neuromuscular Disease Like Charcot Marie Tooth or MS.

FIRST WORLD PROBLEMS

Disclaimer: All problems are relative to the person, situation, demographic, & resources . The following “problems” are those faced by me, an admittedly privileged suburban woman with invisible (not obvious) physical challenges due to an inherited neuromuscular disorder called Charcot Marie Tooth (CMT). The hashtag #firstworldproblems refers to those everyday, non…

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Lifestyle Invisible Disability, Self-Esteem & Body Confidence

BODY CONFIDENCE

When I was 15 years old, I went to ”fat camp”. It was the mid 80’s and after several failed attempts to lose weight via kids’ Weight Watchers’ meetings and ”the grapefruit diet”, I begged my mom to send me to this diet camp I had seen advertised in a…

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Lifestyle Fashion, Style & other tips for summer wedding & party guests with disabilities like charcot marie tooth disorder, MS & other neuromuscular or neurological conditions.

Do’s & don’ts for weddings

We learn lessons from the moment we can comprehend. Some are taught in books and classrooms, and some are learned from experience. I was diagnosed with a progressive neuromuscular disorder in 2nd grade. No one ever taught me how to actually live with the physical challenges of having Charcot Marie…

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