If you grew up watching The Love Boat, then the prospect of going on a cruise might trigger childhood fantasies of dining at the selective “Captain’s Table”, or kissing handsome men on the Lido Deck. But, for first time cruisers with disabilities, those Julie McCoy fantasies may be replaced with nightmares of being stuck on the Titanic.
There is no better excuse than Valentine’s Day to channel your inner Beyonce and act like the sexy goddess you are. Whether you’re planning a romantic night out, dinner with girlfriends, or a date night with Netflix & some cheap champagne, February 14th is all about looking and feeling red hot – disability, or not.
Do you remember those Choose Your Own Adventure (CYA) books from the 80’s 90’s? I know I’m totally dating myself but I was soooo into them (for about a minute) in between Judy Bloom books (hijacked copy of Wifey not included) & the Sweet Valley High series.
I live in Michigan and it’s cold In the month of December. Yep, I know, shocking right? But, once temps drop below 40 degrees it’s all we Midwesterners ever seem to talk about…rather, complain about. For the typical and “able” winter despiser, December to early March is all about layering up, thawing out, and making it through.
The Holiday Season isn’t all jingle bells and sleigh rides when you have an invisible disability. As temps begin falling and your calendar starts filling, the stress and worry about how the hell you’ll make it through it all, rears it’s Scrooge like head. Of course this time of year can be stressful for everyone. There is a ton of pressure to be merry and create picture perfect, Norman Rockwell like moments, to then post on Facebook of course.
Do you remember when we had to have our photos developed before viewing the images? The days when selfies weren’t even a thing and group shots didn’t involve a million retakes? Back then, we had no way of knowing if our arms looked flabby or if our leg braces were showing in photos until we picked up the physical prints.
There’s an app for almost everything these days. I’m by no means a techy, ( I couldn’t move past level 1 in Ms. Pac-Man and flunked high school typing) but in order to keep up with and track of my kids, I’ve evolved into an app connoisseur of sorts.
Disclaimer: All problems are relative to the person, situation, demographic, & resources . The following “problems” are those faced by me, an admittedly privileged suburban woman with invisible (not obvious) physical challenges due to an inherited neuromuscular disorder called Charcot Marie Tooth (CMT). The hashtag #firstworldproblems refers to those everyday, non life-threatening, and sometimes superficial ”problems”…
When I was 15 years old, I went to ”fat camp”. It was the mid 80’s and after several failed attempts to lose weight via kids’ Weight Watchers’ meetings and ”the grapefruit diet”, I begged my mom to send me to this diet camp I had seen advertised in a teen fashion magazine. The camp,…
We learn lessons from the moment we can comprehend. Some are taught in books and classrooms, and some are learned from experience.
I was diagnosed with a progressive neuromuscular disorder in 2nd grade. No one ever taught me how to actually live with the physical challenges of having Charcot Marie Tooth Disorder.