Lifestyle style choices to look good and feel good with an invisible disablity

Lifestyle 5 Necessary Evils When You Wear Leg Braces

Fear & Loathing in Leg Braces

A necessary evil is something that must be done or accepted in order to achieve a better outcome. Basically, it’s a scary and/or unenjoyable act that sucks in the moment, but the consequences of not doing it can suck way more than the act itself.

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Lifestyle Clothes & shoes to wear with leg braces / afos for an outdoor party

What to wear with a barbecue with leg braces

Nothing screams the start of summer more than a backyard barbecue! With Memorial weekend fast approaching, patio furniture everywhere, is being cleaned and uncovered and the smell of charcoal is beginning to fill the air. Whether it’s a graduation party or casual gathering with friends, an evite to some type…

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FashionLifestyle How to look & feel sexy on Valentine's Day with an invisible disability, afos and neuropathy.

Date Night Valentines Day

There is no better excuse than Valentine’s Day to channel your inner Beyonce and act like the sexy goddess you are. Whether you’re planning a romantic night out, dinner with girlfriends, or a date night with Netflix & some cheap champagne, February 14th is all about looking and feeling red…

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Lifestyle How to improve your life and make New Years resolutions With An Invisible Disability like Charcot Marie Tooth Disease.

Choose Your Own Adventure

Do you remember those Choose Your Own Adventure (CYA) books from the 80’s 90’s? I know I’m totally dating myself but I was soooo into them (for about a minute) in between Judy Bloom books (hijacked copy of Wifey not included) & the Sweet Valley High series.

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Lifestyle How to balance Christmas parties & life an invisible disability like Charcot Marie Tooth, MS, Cerebral Palsy, & neuropathy.

Holiday Survival

The Holiday Season isn’t all jingle bells and sleigh rides when you have an invisible disability. As temps begin falling and your calendar starts filling, the stress and worry about how the hell you’ll make it through it all, rears it’s Scrooge like head. Of course this time of year…

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Lifestyle 13 Apps To help people with chronic conditions and disability live happy lives

13 LIFE CHANGING APPS

There’s an app for almost everything these days. I’m by no means a techy, ( I couldn’t move past level 1 in Ms. Pac-Man and flunked high school typing) but in order to keep up with and track of my kids, I’ve evolved into an app connoisseur of sorts.

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LifestyleResources Unexpected Priveledged Problems When You have disabilities, Wear AFO’S /Leg Braces & Have A Neuromuscular Disease Like Charcot Marie Tooth or MS.

FIRST WORLD PROBLEMS

Disclaimer: All problems are relative to the person, situation, demographic, & resources . The following “problems” are those faced by me, an admittedly privileged suburban woman with invisible (not obvious) physical challenges due to an inherited neuromuscular disorder called Charcot Marie Tooth (CMT). The hashtag #firstworldproblems refers to those everyday, non…

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