Unexpected Priveledged Problems When You have disabilities, Wear AFO’S /Leg Braces & Have A Neuromuscular Disease Like Charcot Marie Tooth or MS.

FIRST WORLD PROBLEMS

Disclaimer: All problems are relative to the person, situation, demographic, & resources . The following “problems” are those faced by me, an admittedly privileged suburban woman with invisible (not obvious) physical challenges due to an inherited neuromuscular disorder called Charcot Marie Tooth (CMT). The hashtag #firstworldproblems refers to those everyday, non life-threatening, and sometimes superficial  ”problems”…

Invisible Disability, Self-Esteem & Body Confidence

BODY CONFIDENCE

When I was 15 years old, I went to ”fat camp”. It was the mid 80’s and after several failed attempts to lose weight via kids’ Weight Watchers’ meetings and ”the grapefruit diet”, I begged my mom to send me to this diet camp I had seen advertised in a teen fashion magazine.  The camp,…

Fashion, Style & other tips for summer wedding & party guests with disabilities like charcot marie tooth disorder, MS & other neuromuscular or neurological conditions.

Do’s & don’ts for weddings

We learn lessons from the moment we can comprehend. Some are taught in books and classrooms, and some are learned from experience.
I was diagnosed with a progressive neuromuscular disorder in 2nd grade. No one ever taught me how to actually live with the physical challenges of having Charcot Marie Tooth Disorder.