Shoe shopping has always been difficult for me. I was born with classical Ehlers-Danlos Syndrome and, along with faulty connective tissue and loose joints, I was born with flat feet. I have weak ankles, huge bunions on both big toes, crooked and curled smaller toes, stretched Achilles tendons, and a variety of other issues that make finding a comfortable, supportive, stylish pair of shoes about as easy as finding a double-rainbow.
interviews with invisible disabilities inspiring people with chronic illness
I started performing standup comedy when I was 14. I was a huge fan of Gilda Radner, but when I saw Joan Rivers doing a set on the show Solid Gold, I knew I had found an outlet for my humor. I also knew that I would be considered too young to be taken seriously as a comic. In the mid-80’s young comics, let alone female comics, were a rare breed.
There’s a video of me at my third birthday party. I’ve watched it so many times, it’s almost my own memory. I’m Shirley Temple’s 1990s doppelgänger in a frilly dress, my blonde ringlets barely held back by a strand of yarn. In the small swath of thick carpet not covered in wrapping paper and new toys, I’m shuffling along in my very first pair of high heels.
There are many things that can be learned from having a disability – lessons that apply to everyone, disability or not. Although I am a sophomore in college now, when I was in eighth grade, I started to lose control of my legs.
When Lainie asked me to share my story about living with CMT I jumped at the chance. Then I realized that I have never shared my journey with having CMT. I struggled with this post for weeks because of that reason and decided that I will share with you all what I can.
I was 31 years old, invincible and working full-time as a paralegal at a law firm, while going to nursing school full-time. Then one day, I started getting very tired easily and taking naps. I just figured I was exhausted from being so busy. It would be summer soon and I would be off from school. Well, summer came, and I felt no better.
Hello, I’m Christy from sunny San Diego, California. I was the first in my family to be diagnosed with Charcot Marie Tooth at the tender age of 16. CMT is a progressive disease that affects the lining of the nerves controlling the outer limbs.
I was diagnosed with multiple sclerosis in 2013. MS had done damage to my brain and spinal cord affecting the left side of my body. My left leg couldn’t get me traveling very far or for very long. I developed an action tremor in my left arm and could not hold my bladder well when the urge came to use the bathroom fast. I was told to not drive long-distances or in poor conditions because my brain was a poor multitasker.
I am a 14-year-old living with CMT. Charcot-Marie-Tooth disorder is a genetically inherited neuromuscular disease that typically affects the nerves in your hands, feet, and legs. As a result of CMT, my hands tremor, my legs spasm, and my feet hurt a lot due to my extremely high arches.
Christalle Bodiford is an artist, advocate, writer, and adventure seeker. As an entrepreneur diagnosed with epilepsy, Christalle brings a unique perspective of empowerment that inspires others to embrace a positive mindset and live with purpose. When she’s not writing or advocating, Christalle enjoys puppy snuggles with her scruffy terrier and outdoor adventures with her husband.
Did you know that the number one cause of disability in the US is Arthritis? Don’t worry, I had no idea either. Arthritis affects more than 50 million Americans, which equates to 1 in every 5 adults and over 300,000 children in the US alone. That’s A LOT of people.
Keisha Greaves is a woman with style, substance, and fierce determination. From a young age, Keisha dreamt of working in the fashion industry. After getting her Bachelors degree in fashion design and merchandising, Keisha went onto to study business in graduate. Keisha was about to finish grad school when she began experiencing unusual physical problems.