live your best life – disability hacks and advice for neuropathy
I have an inherited neuromuscular disorder called Charcot-Marie-Tooth Disease (type 2A). Although CMT Disorder shows up differently for everyone, it generally causes a slow deterioration of a person’s peripheral nerves and muscle strength.
Hello my name is Lainie and I have brain fog. Brain fog by dictionary definition is described as: “a usually temporary state of diminished mental capacity marked by an inability to concentrate or to think or reason clearly.”
Cori Fischer is a college sophomore studying to become an occupational therapist and a part-time intern at Trend-ABLE. Cori has a movement disorder that affects her legs and hands, making everyday tasks difficult. Despite her various physical challenges, Cori epitomizes positivity and perseverance.
A necessary evil is something that must be done or accepted in order to achieve a better outcome. Basically, it’s a scary and/or unenjoyable act that sucks in the moment, but the consequences of not doing it can suck way more than the act itself.
When makeup is used to enhance a person’s natural beauty, it can be incredibly empowering. This is especially true for people living with chronic conditions & disabilities. As the saying goes, when you look good you feel good, and when you feel good, you look good.
You don’t realize how many everyday tasks require the use of a pincher grip until you don’t have one. To clarify, I have pinchers (fingers), it’s the gripping part that doesn’t cooperate.
Although I try to be positive and live my best life despite having peripheral neuropathy, it’s the small things, that can be the most frustrating and get me off my groove. Btw, if you have no clue who I am, or what I have, start here.
Until recently, fashion and disability was pretty much an oxymoron. The clothing available for people with physical challenges called “health wear” was found in home medical supplies stores next to other functional items like incontinence supplies and shower seats.
If you follow any influencers on Instagram or have been inside a Sephora or even your local drugstore in recent years, then you’re probably well aware of the at home face mask trend. From inexpensive Korean sheet masks to high end 24 carat gold ones, face masks of all types are a thing – a HUGE thing.
Straightening one’s hair when you have hand weakness and other disabilities is not only difficult, it’s downright dangerous! Believe me, I’ve probably bought every type of flat iron ever made and have the burn marks to prove it. Sure, wearing gloves can help, but not so much when you drop a 375° iron on your foot or accidentally brush it against your forehead
You are going to LOVE DIY frayed denim jeans! It’s one of my favorite ways to repurpose jeans and has added a lot to my wardrobe without a big expense. One of the easiest ways to update an old pair of jeans is to cut off the bottom seam. Some skinny jeans taper close to…
Disclaimer: All problems are relative to the person, situation, demographic, & resources . The following “problems” are those faced by me, an admittedly privileged suburban woman with invisible (not obvious) physical challenges due to an inherited neuromuscular disorder called Charcot Marie Tooth (CMT). The hashtag #firstworldproblems refers to those everyday, non life-threatening, and sometimes superficial ”problems”…
If you have fine motor issues, then you know all too well the struggle of pulling, gripping, and sliding any type of card. In my post, ”How To Get A Grip When You Literally Can’t”, I talk about the daily challenges I encounter just running basic errands with hand neuropathy.
Whenever I’m asked to show my drivers license I cringe.
Skip to content