Shoe shopping has always been difficult for me. I was born with classical Ehlers-Danlos Syndrome and, along with faulty connective tissue and loose joints, I was born with flat feet. I have weak ankles, huge bunions on both big toes, crooked and curled smaller toes, stretched Achilles tendons, and a variety of other issues that make finding a comfortable, supportive, stylish pair of shoes about as easy as finding a double-rainbow.
As the Coronavirus continues to spread & most of us are stuck home doing our part by social distancing and trying our best to stay positive and sane, you may, like me, be feeling powerless and wishing you could do more to help.
If there’s anything I’ve learned from having a progressive chronic condition and disabilities, it’s that focusing on the things we can’t control is pointless and downright depressing. We will get through this together by staying positive and focusing on the things we can do right now for ourselves and each other.
If you’re a makeup & skincare junkie, than you’ve probably heard of the brand Beautycounter. It seems like every Instagram Influencer (& their mothers) have been touting the awesomeness of Beauty Counter’s line of clean skincare & makeup products for years & I’m arriving late to a really fabulous party.
I started performing standup comedy when I was 14. I was a huge fan of Gilda Radner, but when I saw Joan Rivers doing a set on the show Solid Gold, I knew I had found an outlet for my humor. I also knew that I would be considered too young to be taken seriously as a comic. In the mid-80’s young comics, let alone female comics, were a rare breed.
There’s a video of me at my third birthday party. I’ve watched it so many times, it’s almost my own memory. I’m Shirley Temple’s 1990s doppelgänger in a frilly dress, my blonde ringlets barely held back by a strand of yarn. In the small swath of thick carpet not covered in wrapping paper and new toys, I’m shuffling along in my very first pair of high heels.
There are many things that can be learned from having a disability – lessons that apply to everyone, disability or not. Although I am a sophomore in college now, when I was in eighth grade, I started to lose control of my legs.
When Lainie asked me to share my story about living with CMT I jumped at the chance. Then I realized that I have never shared my journey with having CMT. I struggled with this post for weeks because of that reason and decided that I will share with you all what I can.
As a person living with disabilities due to CMT Disorder, (read more about me here) the gifts I’ve curated below are ones that I want (hopefully my family reads my blogs?) and that I would be blown away to receive. Although some of the items may have a higher price tag than usual, their reported impact on some (real) reviewers lives has been life-changing. And, ‘‘tis the season to splurge, anyway, right?
I received two pairs of Revere Shoes at no charge & will get a small commission should you decide to use the links provided in this post. I created Trend-ABLE to help empower orthosis wearers & others with invisible disabilities to look & feel their best. All opinions are always my own.
I have an inherited neuromuscular disorder called Charcot-Marie-Tooth Disease (type 2A). Although CMT Disorder shows up differently for everyone, it generally causes a slow deterioration of a person’s peripheral nerves and muscle strength.
I was 31 years old, invincible and working full-time as a paralegal at a law firm, while going to nursing school full-time. Then one day, I started getting very tired easily and taking naps. I just figured I was exhausted from being so busy. It would be summer soon and I would be off from school. Well, summer came, and I felt no better.
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