Lifestyle COCKTAIL SURVIVAL TIPS

5 COCKTAIL PARTY SURVIVAL TIPS FOR UNSTEADY GIRLS

I love parties. Getting an evite or that rare old school paper invite in the mail, is exciting.
It always feels good to be included.

Most parties these days are casual. If a dress code is mentioned, it typically says “Saturday Night Snazzy” or something else implying “Look Like You Give A Shit” but anything goes.

But, getting the rare “Cocktail Party Attire” invite used to cause me great anxiety and stress. With an invisible physical disability I have worries most people never even think about.

What will I wear that will cover my AFO’s? How long will I have to stand in place?
Will they even have a sit down dinner? How will I hold a plate and a drink?

Maybe it’s age or planning ahead, but I don’t stress as much anymore.

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Lifestyle Clothes & shoes to wear with leg braces / afos for an outdoor party

What to wear with a barbecue with leg braces

Nothing screams the start of summer more than a backyard barbecue! With Memorial weekend fast approaching, patio furniture everywhere, is being cleaned and uncovered and the smell of charcoal is beginning to fill the air. Whether it’s a graduation party or casual gathering with friends, an evite to some type of outdoor barbecue is imminent; You may even want to check your inbox right now.

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Lifestyle How to balance Christmas parties & life an invisible disability like Charcot Marie Tooth, MS, Cerebral Palsy, & neuropathy.

Holiday Survival

The Holiday Season isn’t all jingle bells and sleigh rides when you have an invisible disability. As temps begin falling and your calendar starts filling, the stress and worry about how the hell you’ll make it through it all, rears it’s Scrooge like head. Of course this time of year can be stressful for everyone. There is a ton of pressure to be merry and create picture perfect, Norman Rockwell like moments, to then post on Facebook of course.

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Lifestyle Fashion, Style & other tips for summer wedding & party guests with disabilities like charcot marie tooth disorder, MS & other neuromuscular or neurological conditions.

Do’s & don’ts for weddings

We learn lessons from the moment we can comprehend. Some are taught in books and classrooms, and some are learned from experience.
I was diagnosed with a progressive neuromuscular disorder in 2nd grade. No one ever taught me how to actually live with the physical challenges of having Charcot Marie Tooth Disorder.

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