Q & A with EDS Ehlers Danlos syndrome warrior Lara Bloom about Life, Style & Disability.

Meet Lara Bloom

Lara Bloom is the international Executive Director of the Ehlers-Danlos Society where she is responsible for raising awareness of rare and invisible diseases, including Ehlers-Danlos.
She works to raise funds for research and speaks at conferences all over the world, lecturing medical students and professionals, and supporting specialists in the EDS field by offering her experience as a leading patient expert.

Stylish Woman who has MS, an Invisible Disability does an interview

Meet Ardra Shephard

Ardra Shephard is a devastating illness expert, having lived with multiple sclerosis for more than 15 years. Her blog Tripping On Air is the irreverent, insider-scoop about MS that manages to inspire without ever being saccharine. It’s frank, it’s funny, it’s what you’d want your best friend to tell you about what it’s like to live with chronic illness. Ardra was named one of the Top 50 MS bloggers “in the universe” by feedspot.com, one of the Top 25 MS bloggers by healthlabs.com, and was featured on Sickboy Podcast (October 2017).

Woman with CMT Charcot Marie Tooth Disorder Inspires others with Fitness Tips

Tara Lyn Emerson Q&A

Tara has been in athletics her whole life. She is a certified trainer, spinning, and TRX instructor, and she was named one of Los Angeles’ best instructors by Class Pass.

Movement is important to Tara because she lives with Charcot Marie Tooth Disease (CMT). This disease has caused progressive atrophy in her lower legs, limiting her balance and strength.