Disclaimer: All problems are relative to the person, situation, demographic, & resources . The following “problems” are those faced by me, an admittedly privileged suburban woman with invisible (not obvious) physical challenges due to an inherited neuromuscular disorder called Charcot Marie Tooth (CMT). The hashtag #firstworldproblems refers to those everyday, non life-threatening, and sometimes superficial ”problems”…
We learn lessons from the moment we can comprehend. Some are taught in books and classrooms, and some are learned from experience.
I was diagnosed with a progressive neuromuscular disorder in 2nd grade. No one ever taught me how to actually live with the physical challenges of having Charcot Marie Tooth Disorder.
This amazing documentary about the super fabulous Bernadette Scarduzio is a must-see and it will stay with you long after viewing. The film (available on Amazon Prime) shares a very personal glimpse into Bernadette’s life; the many challenges she faces, incredible losses and her resilience. Bernadette suffers from Charcot-Marie-Tooth (CMT) disease, a genetic disease affecting…
The saying “You Can’t Judge A Book By It’s Cover” has a literal meaning for those of us with invisible physical disabilities and challenges.
When people think of the term, disability, they mostly picture people in wheelchairs or those using walkers or canes. Those little blue signs designating special parking and larger (usually cleaner) bathrooms are distinctly labeled; wheelchair users can park or pee there.
These assistive devices symbolize to the world that the person using them has either a temporary or permanent physical disability. They are treated differently.
The summer before I started high school (in the dark ages before internet and iPhones ) I had a major operation on both of my legs and had to wear two leg casts and be in a wheelchair for 6 months. It sucked to say the least.
My best friend Stacie used to push me around the hallways at school and at the mall on weekends.